This research investigates to what extent and how different (public or private) organisations collecting health-related data embrace a participative stance toward their participants as well as the general public, and how effective the employed initiatives are to give voice and meet the needs of all social groups, including minorities. The final objective is to diagnose and promote the best collaborative formats for the equitable pursuit of the public interest in data-driven initiatives and in medical research
Ilaria Galasso, "Ilaria Galasso - Collaborative Decision-Making in Health-Related Data Sharing", contributed by , STS Infrastructures, Platform for Experimental Collaborative Ethnography, last modified 19 September 2019, accessed 7 May 2024. https://stsinfrastructures.org/content/ilaria-galasso-collaborative-decision-making-health-related-data-sharing-0
Critical Commentary
This research investigates to what extent and how different (public or private) organisations collecting health-related data embrace a participative stance toward their participants as well as the general public, and how effective the employed initiatives are to give voice and meet the needs of all social groups, including minorities. The final objective is to diagnose and promote the best collaborative formats for the equitable pursuit of the public interest in data-driven initiatives and in medical research